Meet Patricia Fraser !
What was it like to grow with Spina Bifida or any other disability for you? When I was born, the doctors told my parents that I would...
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Walk-N-Rolling With Spina Bifida
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The bittersweet journey continues…
For once, I have good news to share! Since my last past on losing my vision, my Neuro Ophthalmologist appointment was fast-tracked from 1...
Hydrocephalus: Category 1 triage – Not sure how I feel about that…
A few weeks ago, I wrote about the visual disturbances I’ve been experiencing. Something, which at the time, freaked me out (naturally)....
So you’re in a wheelchair....and you’re not sure what you’re capable of Tyler Brey
This is an all too common feeling for those in the disabled community. It’s natural to look at what you can’t do instead of what you can....
Life without Hydrocephalus
Many of us who have this condition have been born with it and therefore don’t have any idea what it’s like to live without it. Also, you...
The bittersweet journey continues…
For once, I have good news to share! Since my last past on losing my vision, my Neuro Ophthalmologist appointment was fast-tracked from 1...
Where Can I Find Love ? Joanne Marszal
Where Can I Find Love? Where can I find love? That many people speak of sometimes, I feel so empty inside Like something that has been...
Hydrocephalus: Eye trouble and the stress of not knowing… skye waters
When you go from care (practically non-existent) to doctors using words like: “You are high risk”, “This is serious”, “This is important...
Celebrating The Disabled Dad - Val Vera
"Are those your children?" Years ago, I took my three daughters shopping. Nothing fancy, no special occasion. Just an average day as a...
Visit these Spina Bifida Summer Camps for Kids
We recognize how hard it is to find adaptive outdoor events for anyone with a disability, and understand it’s even more difficult when...
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