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What EXACTLY is Spina Bifida?

WHEELCHAIR AIR TRAVEL – “QUAD” STYLE

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Life without Hydrocephalus

Many of us who have this condition have been born with it and therefore don’t have any idea what it’s like to live without it. Also, you...

The bittersweet journey continues…

For once, I have good news to share! Since my last past on losing my vision, my Neuro Ophthalmologist appointment was fast-tracked from 1...

Where Can I Find Love ? Joanne Marszal

Where Can I Find Love? Where can I find love? That many people speak of sometimes, I feel so empty inside Like something that has been...

Celebrating The Disabled Dad - Val Vera

"Are those your children?" Years ago, I took my three daughters shopping. Nothing fancy, no special occasion. Just an average day as a...

Visit these Spina Bifida Summer Camps for Kids

We recognize how hard it is to find adaptive outdoor events for anyone with a disability, and understand it’s even more difficult when...

Romance Redefined

Aaron and I are getting married next Saturday, May 18. We’ve invited 70 of our close friends and family. Originally we started with only...

Accepting My New Disability

A few weeks ago, I went to an audiology appointment I’d been avoiding for over a year. Internally, I knew I could no longer hear as well...

These Low Limits Don't Help

Did you know that there are low income limits for services like social security, agency for persons with disability services, housing...

Hydrocephalus: How does a mother " Take it easy"?

I’m a mother of 3, living with Hydrocephalus for the last 12 years, since diagnosis. For the most part, I’ve had a “good run” with the...

Finding ACCEPTANCE as a parent with a disability

When we think of Valentine’s Day, we think of love. And this year, I experienced that. But it was also a celebration of one of the...

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Walk-N-Rolling With Spina Bifida