Francisco Wafula is my son who was born on March 26th 2013, My son has Spina Bifida and Hydrocephalus. His operation was done when Francisco was only two weeks old, while shunting after three weeks. Francisco has a neurogenic bladder and bowel, he has no sensation in his lower limbs, therefore he can't crawl. His speech is normal. ​​ The challenges i encounter most with Francisco is infection (UTI). Sometimes he is rejected in some hospitals due to lack of specialist thus for

With New Years right around the corner - only 3 more days left to go - I wanted to discuss something that I personally have never seen discussed on any other disability-based blog. For most, New Years celebrations are fun and festive, but for others, they are stressful, and even scary to be a part of. Why? For these people, the one thing getting in the way of them enjoying themselves on New Years...Fireworks! Many, if not all people who do not enjoy celebrating the new year,

All my life I’ve required care, whether it be from family members, friends or paid employees. For over a decade now I have been hiring my own personal assistants to help me with an array of tasks, including personal care. I have always chosen to recruit my own staff rather than use agency workers. This has given me much more flexibility in terms of when, how and for the duration of time I use my PAs. It also means that I know exactly who will be providing my care, which is no

Ethan was born April 6, 2007 at 4:34 AM . He wasn't breathing when he was born and his spina bifida was worse then what they thought. He had to be rushed into surgery. I didn't get to see him for 14 hours after his birth. He was hooked to every machine you could image. Later that night the doctors came in the room and told me he was showing no signs of waking up and wanted to know if I wanted to take him off the machine that was breathing for him. I told them no. The next day

I was born in May, 1975, with Spina Bifida and Hydrocephalus. The doctors told my family that I wouldn't walk, talk, or live past the age 4. I had an immediate surgery to have a VP Shunt placed, which was revised and replaced when I was 12 years old . I spent many visits in the hospital from the time I was born until I was 12. As I got older, my doctors told me that I wouldn't be able to have children or that I would have difficult pregnancies (which I had 2) and there was a

Hair perfectly styled for that “just got out of bed” look. Check. Guitar and microphone. Check. Singing and songwriting talent. Check. It looks like Blaine Harrison, the lead singer of the British rock group Mystery Jets has everything on the checklist. He also has spina bifida. Harrison began his musical training with the drums but found he had no talent for them. His father, Henry Harrison is a musician and lyricist encouraged his son Blaine to keep playing music un

Thought it would be fun to share something from this year that I really enjoyed. Then I thought, "Music! Who doesn't love music?!" Below are my top 5 favorite songs of 2016, in no particular order of preference, but by the date in which each song was released. Hope you all enjoy! 1.) Can't Stop The Feeling! - Justin Timberlake (released: May 6, 2016) Released for the movie Trolls, which was also released this year, this song is a fun, upbeat, and catchy tune, that personally

I absolutely HATE asking for help with something! Especially if its something most people know how to do. Can you say pride issues? I’ve gotten better at it over the years though. I have learned that I have more struggles than most. I am good at some things and not so good at others. And that’s what makes me unique. Getting to a point of asking so many questions led me toward total surrender in Christ. I’ve been learning to COMPLETELY rely on God for everything. And since I

Christmas Eve I received a message from a young lady named Anna Mabel . She asked if I would be interested in writing and contributing pertinent articles to her web site called Walk N Rolling With Spina Bifida. They have over 11,000 members and are growing daily. It was begun by a young woman with Myelomeningocele Spina Bifida , who, at 32, has the drive, attitude and conviction that I see in my young 6 yr. old grandson. When Breighton was born with SB, I began writing commen

I am so happy you are here to watch this month's very informative video.I wanted to bring this to all of you last month, However, I injured my ankle and posted a different video in it's place. Of course, also informative:) This month I really hope you will share this video with mothers living with autism and other developmental disabilities suchas Mental Retardation, Cerebral Palsy,Prader- Willi Syndrome, and Spina Bifida. I know you will not only find this video to be comfor