Nicole Nott's daughter Jillian was born with Spina Bifida Myelomeningocele and Hydrocephalus. Nicole, Jillian and the rest of their family are from Clinton, Ontario, Canada. Due to being incontinent, Jillian has to be catheterized every few hours. Jillian tends to get UTIs (urinary tract infections) a lot. One kidney is only functioning at 30%, but the other one is good.
Jillian does not have much feeling in her legs from the knees down. Jillian walks on her own but not per
Independence is a topic that often comes up by anyone affected by Spina Bifida (SB). Whether you are an individual living with SB or a family member of such a person. Often I read, on social media ( like facebook), posts asking about how to gain independence. These posts are usually from frustrated individuals with Spina Bifida looking for help in fulfilling their dream of independence. Parents probably ask themselves if their child will ever be independent. Some people with
Hello I am Bethany! I am the mother of a baby girl who was born with Spina Bifida. Her name is Piper. Our family’s story is a little different from many I have read because we have been so very blessed with Piper’s recovery and strength.
I took a blood test when I was pregnant that was to indicate the sex of our baby and also test for other abnormalities. We were called back in to the office for a follow-up ultrasound when they discovered our baby likely had a neural tube b
Suzett Jaquez is a 19 year old mother to be of a little girl who will be born with a birth defect called Spina Bifida. Suzett and her significant other had a lot of emotions inside of them. They were really shocked, very confused and devastated. Why? Because the doctors told them, Spina Bifida would have a huge impact on their daughter's mobility and learning skills. Suzett blamed herself for a while thinking it was her fault that her daughter will be born with Spina Bifida.
Hey there lovely people! I have recently been trying out a new daily routine of exercising every day as a way to be more active throughout the day. Do any of you exercise? if so, what kinds of exercise do you implement in your daily routine? I would love to know if any of them are adaptable for me. Firstly, I would have to say that I have definitely seen a change in my mood since I started working out. I wake up with a purpose and a goal. I feel good about myself and I feel a
I am honored to have been given the opportunity to share my story in an effort to spread awareness and provide some insight into the life of someone living with Spina Bifida at Walk N Rolling With Spina Bifida. This is a story of strength, courage and overcoming adversity.
It all started 20 years ago in Okinawa Japan. My parents were about to have their third child. Both the doctors and my parents had no idea what to expect. From the moment I was born, the doctors were surpr
My name is Kimberly Shaver and I was born with Myelomeningocele Spina bifida. I can walk with forearm crutches and I wear braces on my legs. But I do have a scooter for long distances. I have a Ventrical Peritoneal shunt. I am pretty independent. I do most everything myself. I am single and have no kids. When I was born I had a hole in my spine they closed it and also I had ten surgeries before I could go home.
When I was growing up and in school I was never treated differen
Hello my name is Krista Shulze. I am from Anna, Ohio, which is a very small town. I will start off with what it was like to find out that Caleb had a disability. From the beginning, being pregnant with Caleb was challenging. First of all, we were not even supposed to be able to get pregnant. We adopted our first child. Anyway, finding out we were pregnant with Caleb was so exciting. Tears were had by all who knew us, but shortly after we found out we were pregnant, I started
Hi, my name is Jaimie Hope. I became a published author in 2006 and CEO of my own publishing company in 2014. Oh yeah, I was also born with Spina Bifida and am a full-time wheelchair user.
I was born on November 3, 1976. Growing up, my home life was typical. I liked to play and have fun doing the same things my able-bodied sister and cousins did. However, my life at school couldn't have been more different.
Although my parents struggled to keep me mainstreamed while I was i
My name is Lori Bowen , I was born in September of 1966. I was adopted as a baby. I have Spina Bifida, plus 2 shunts to drain fluid from my brain because of Hydrocephalus. Some of my greatest experiences growing up were, I was the poster child for Easter Seals in 1970. I got to meet President Nixon, and several other famous people thru the years. I was in a wheelchair square dance group. Growing up, and into my adult years I endured a lot of abuse. I have been sexually, menta