Walk-N-Rolling With Spina Bifida

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    Teadora

    Teadora

    What EXACTLY is Spina Bifida?

    What EXACTLY is Spina Bifida?

    WHEELCHAIR AIR TRAVEL – “QUAD” STYLE

    WHEELCHAIR AIR TRAVEL – “QUAD” STYLE

    Archive

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    • January 2018 (33) 33 posts
    • December 2017 (7) 7 posts
    • November 2017 (4) 4 posts

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    Hospital Admissions and Disability

    Hospital Admissions and Disability

    Thursday 8th March marked International Women’s Day 2018. For me, it was spent in hospital (Russells Hall, Dudley) undergoing minor surgery. Could be worse, I suppose! Due to the fact I have Ullrich congenital muscular dystrophy (a muscle-wasting condition), people are often horrified when I tell them how many general anaesthetics I’ve endured throughout my life (at least 10 – honestly, I’ve lost count!). Although it is obviously best avoided, I’ve personally never encounte
    Joshua Rucker

    Joshua Rucker

    Joshua Rucker from Detroit Michigan became a T-9 /T-10 complete paraplegic at the age of 18 years old due to a work automobile accident . Joshua uses a wheelchair to get around due to paralysis of the waist down . Growing up , he played sports , went to school and enjoyed being a kid. After becoming a paraplegic, Joshua does his best to stay healthy by eating healthy and exercise. Some of Joshua’s hobbies are Wheelchair basketball, Wheelchair bodybuilding, sled hockey
    Peter Rutt

    Peter Rutt

    I was born in Detroit, Michigan, USA in December, 1965 with the Myelomeningocele form of Spina Bifida. I know of one other person born in the same neighborhood a couple of years earlier. Doctors' understandings of Spina Bifida and Hydrocephalus were minimal. My parents were told that I would "never see 'ten days'". My spine was left exposed because of the "then" common practice of "euthanasia" where babies born with physical defects were just left in cribs to die. It was o
    Welcome Rene!!

    Welcome Rene!!

    So i found out my baby boy Rene has Spina Bifida on January 3, 2017. I was 5 months pregnant. I don’t think I cried so much in my life. so i had so much doctor appointments an not one doctor could tell me what i will be expecting if my son will ever walk play like all my other kids i never even hurd of the word Spina bifada they induced me at 39 weeks an i ended up having C-section. I did not even get to see my son the took him straight to the NICU i had to waight hours to me
    Don’t Forget To Be Perfect

    Don’t Forget To Be Perfect

    Don't Forget To Be Perfect Self-acceptance is hard for me… allowing my value to be dictated by my flaws, trying to fit into a world where I was once thought of as less-than. It is hard to get the words of others out of your head… “You’re on crutches and braces.” “You use a wheelchair.” “You can't play with us.” “You’re my disabled friend.” “You won't have a real relationship.” “Those scars are gross.” Looking to God for comfort, only to hear… “You don't worship li
    Lyndsi Holmes

    Lyndsi Holmes

    Lyndsi Holmes is 28 years old from New York. Lyndsi was born with a disability called Spina Bifida. To get around she wears braces . Growing up , Lyndsi played a lot of sports and had a lot of friends.​Going to school went well for Lyndsi. She did well in her classes and went on to get a bachelor's and a master's degree. Lyndsi has a and her family has a chihuahua named Manny and fish who don’t have any names . It’s been a little time , but Lyndsi also loves to go horseback
    How To Make a Leprechaun

    How To Make a Leprechaun

    Directions : Step 1 : First draw or sketch a leprechaun picture that you or your child likes . Step 2: Color the leprechaun drawing Step 3: Find an empty Toilet paper role ( preferably a small one ) Step 4: Find a glue stick Step 5: Glue your leprechaun on the toilet paper roll Step 6: Enjoy your leprechaun!!
    The War Within: PTSD and Traumatic Brain injury

    The War Within: PTSD and Traumatic Brain injury

    I always start my story with I went to sleep as LeAnn and woke up a total stranger. On September 2014 Labor day I suffered a Acute Subdural Hematoma. A bleeding stroke and brain aneurysm followed by brain surgery to relieve the pressure in my brain. This was caused by a blood infection that went straight to my mechanical heart valves, due to some routine dental surgery. My doctors told my family that if I survived I would never be the same. After 3 months of therapy learnin
    Man In The Mirror

    Man In The Mirror

    As old wounds start to heal and disappear Boldly place scars rise up And now appear Life cycles are being broken And making room for a new fear Everything I dreamed of And asked the universe for Is now near I was too busy chasing something That never left But was here Everything had to stop moving For it to become clear It was always the person Staring back at me In the mirror
    Christian

    Christian

    Christian Grimes was born with Spina Bifida Occulta . She was born with a small dimple. Christian can Walk . Christian also says “ I can ice skate and roller skate “. “ I can’t skateboard though lol “ The Hydrocephalus was found near the end of 5th grade. Christian was getting a medical exam for 6th grade and they discovered She couldn’t bend over even when they pushed on her. They sent Christian to some kind of specialist. The X-ray tech took an x ray of Christian. He tol
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