April - 2018

Walk-N-Rolling With Spina Bifida

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What EXACTLY is Spina Bifida?

WHEELCHAIR AIR TRAVEL – “QUAD” STYLE

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Heather Wicks

Heather Wicks

Hello Walk N Rolling With Spina Bifida readers ! My name is Heather Wicks . I was born with a mild intellectual Disability. I also have a grade 3 brain bleed . I have low vision and mild Cerebral Palsy . How does my disabilities affect me ? They affect me by making me learn things slowly . In other words, it takes me a while to learn new things. If someone takes their time to teach me how to do things or the answer of a question , I can get it Growing up with my disabili

Jordynn Cooley

Jordynn Cooley

Hey Readers ! My name is Jordyn. I am from Seattle Washington but I live in Mill Creek Washington now . I was born with Myelomeningocele Spina Bifida, Hydrocephalus and Arnold Chiari 2. I have a VP shunt Growing up as a child with Spina Bifida was hard for me. I learned to just deal with it. I was pretty lucky when it came to the Spina Bifida. The doctors told my mom I wouldn’t walk. But I proved them wrong. I was delayed. School was always hard for me because I had a learni

Nadia Garzon

Nadia Garzon

Hello Walk N Rolling With Spina Bifida viewers! My name is Nadia Garzon. I am 29 years old and I live in Pennsylvania. I was born with Hydrocephalus, Chiari Malformation, and Encephalocele. I also have a shunt and have undergone eight brain surgeries. Doctors told my mom I wouldn't make it. I proved them wrong! I faced many obstacles. I persevered despite them. As a result of the brain surgeries, I have short term memory loss and have issues with my balance (Ataxia.) I had

Living With Artrogryposis Georgia

Living With Artrogryposis Georgia

Hi, my name is Georgelin Grant, and I'm from Jamaica. I was born with a condition called Arthrogryposis Multiplex Congenita. ( a.m.c) Arthrogryposis , involves joint curvature and contractors in two or more areas of the body. Few months after my birth, my parents were instructed by the district nurse to take me to the John Golding Rehabilitation Centre for the disabled. At the center, I was taught how to manipulate my way through challenging tasks like dressing and feedi

Exercises for Dysphagia

Exercises for Dysphagia

I always start my start my story with "I went sleep as LeaAnn and woke up a total stranger." On September 2014 Labor day, I suffered a bleeding stroke and brain anyurism followed by brain surgery to relieve the pressure. This was due to a blood disease I caught in my mechanical heart valves after some routine dental surgery. The doctors told my family that if I survived, I would never be the same. After 3 months if learning how to walk, talk, chew, swallow, read and write,

My Heart Hurts But Is OverJoyed

My Heart Hurts But Is OverJoyed

My Heart Hurts and Overjoyed My heart hurts at the loss I felt that day But overjoyed the first time I held you. My heart hurts every new diagnosis and surgery But overjoyed when I see how Brave and Strong you are My heart hurts when you cry and ask why But overjoyed with the person your becoming My heart hurts sometimes but most important my heart is overjoyed that God chose me to be your mommy ❤

Brain surgery Equates Brain Injury IMO

Brain surgery Equates Brain Injury IMO

Photo By: Jesse Orrico on Unsplash Anything which harms or penetrates the physical matter inside your head would constitute as a cause of brain injury. It can be caused by blunt force trauma to the head, something which doesn’t physically touch the brain itself but a blow to the head, hard enough to cause damage. Or, it can be an act which, despite in some instances being done with intent (through brain surgery), causes irreversible damage. Similarly, ignoring or taking a bui

On The Inside Looking Out

On The Inside Looking Out

On the inside Looking out, disconnect after brain injury:My beautifully broken brain I always begin my story with "I went to sleep as LeaAnn and woke up a total stranger." On September 2014 Labor day I suffered a bleeding stroke and brain anyurism followed by brain surgery to relieve the pressure to my brain. After some routine dental surgery, I caught a blood infection in my mechanical heart valves. The doctors told my family that if I survived I would never be the same.

Go Green!

Go Green!

Go green every beautiful child born with a broken brain. Go green for the the football players crushed and concussed brain from a deadly game Go green for every soldier broken from war. Go green for those who wear the scars of warriors on their heads Go green for those who go to sleep as themselves and wake up a stranger. Go green for those who's live were suddenly different Wear green for every mother, father, sister or brother who have received that dreaded phone call

I’m Kelly !

I’m Kelly !

Hello Everyone! My name is Kelly Kelsall ! I'm 47 years old . I am a single mom. Iwas born in New Zealand with a birth defect called Spina Bifida I usa a wheelchair to get around . In my wheel chair, I went to my local school. I lived at home until I was 24 years old. I don't work outside the home. My son Joel, who is 15 years old is looking after me. We have a small home. It some times keeps me busy. I go to the local Baptist church. I like going to movies and out for

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