Hello my name is Margaret Tengstrom. I have Lipo Myelomeningocele. My back was closed when I was born. I don’t have Arnold Chiari Malformation, and I can walk. The laminectomy’s started in 1985 and ended in 2007 when I contracted E. coli Spinal Meningitis. I had a Tendon transfer and big toe fusion in my left foot in 2012. In July of 2016 I had a Urostomy Ileal Conduit surgery. That’s when I for the first time had an Ileus and they had to put an NG tube done my nose while

Hi, my name is Mara. I have Spina Bifida. I have had several surgeries, as I am sure we all have. I also have Syringomyelia, and Hydrocephalus, Arnold Chiari Malformation type II, I also have a latex allergy. As of right now, I am fretting over my Arnold Chiari Malformation, i gotta have a decompression surgery in April of 2019. When I am home and bored, my hobbies include watching TV, listening to music and shopping (mostly online). My favorite color is red. My favorite food