October - 2018

Walk-N-Rolling With Spina Bifida

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What EXACTLY is Spina Bifida?

WHEELCHAIR AIR TRAVEL – “QUAD” STYLE

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Halloween 2018

Halloween 2018

Ahh, Halloween. One of my favorite times of the year. The time for costumes,. treats, tricks, and spooky things. I love having some of my family over for food and old Halloween cartoons. So this year my younger cousin and I made some spooky treats to eat while we watch our favorite movies, some sweet and spicy sticky bat wings, dwarf ears (mini calzones), and graveyard cheesecake. Sweet, Spicy, Sticky Bat Wings: Ingredients: Chicken Wings Olive oil Salt Pepper Granulated

Sweet Bailey

Sweet Bailey

Everyone this is Bailey Dunford ! A 26 year old young lady from Virginia . She is one heck of a go getter ! She would love for one day doctors to find a way to help individuals with Spina Bifida and other disabilities control incontinence issues much easier . Bailey was born with Myelomeningocele Spina Bifida and Hydrocephalus. So far she has had 5 surgeries. Bailey loved going to school . Her favorite subject was choir . In fact she loves it so much she still loves to sing.

Sarah Julian

Sarah Julian

Hello Everyone! My name is Sarah Julian ! I was born with Myelomeningocele Spina Bifida. Growing up , I was a happy child . My parents did ALOT of work to keep things as normal as possible for me . But by the time I was 8, I had spent about a quarter of my life in the hospital. You learn a LOT of adult things & grow up FAST in the world of Spina Bifida. My Favorite things as a kid to do are swimming. I love anything water. I also love to do some reading... later on, I got mo

Get Out Of Your Chair

Get Out Of Your Chair

Barbara Gonzalez was born with Spina Bifida. Barbara walked, climbed stairs and got around with the assistance of crutches. Despite her physical and learning disability, she lives an active social life. She worked in the administrative field for 30+ years. Until the age of 40 when a tumor and cyst on her spine would weaken her legs. She would eventually need the use of a manual wheelchair. Barbara would have to find her “new normal.” For the next six years, her faith in God a

Julio

Julio

I’m Cynthia, I am Julio Cesar Vasquez’s mother. I found out Julio had Spina Bifida when I was 5 months pregnant. It has been rough the past 13 years for Julio and our family, but to me the struggle is all worth it ! Julio was born at 36 weeks with Spina Bifida Myelomeningocele and Chiari 2 malformation in San Antonio Texas at University Hospital . Julio received a Trache at 8 weeks old. Why you ask ? Because his brain was not sending the signal to breath so he got a Trache

TBI And Memory Loss

TBI And Memory Loss

I always start my story with " I went to sleep as LeaAnn and woke up a perfect stranger." lee Ann Swinney On September 2014 I suffered a bleeding stroke and brain aneurysm ( Acute subdural dura hetoma.) which led to brain surgery to relieve the pressure in my brain. Due to a blood infection I caught in my mechanical heart valves, after some routine dental surgery. The doctors told my family that if I survived I would never be the same. After nearly 3 months in the hospit

Raised On Music

Raised On Music

I always start my story with "I went to sleep as LeaAnn and woke up a total stranger." On September 2014 Labor day, I suffered a bleeding stroke and brain aneurysm, followed by brain surgery to relieve the pressure in my brain. This was due to a blood infection that went straight to my mechanical heart valves after some routine dental surgery. The doctors told my family if I survived, I would never be the same. After 3 months in the hospital learning how to walk, talk, chew

Distant Wetness

Distant Wetness

I write at the instant the rain stops and splits into some parts dry, some parts wet enough to catch the reflection of this morning’s promise through light and air and, freshly aware I lean my pen into what can be felt as the water you throw rocks into and watch the rings grow as words appear on the page and my poem writes itself from that dry part, the one the rain inspires from a distance…

I’m Angela

I’m Angela

I was born on Tuesday, May 27, 1975 at 6:38pm in a hospital in PG County, Maryland . When I was less than two hours old, I was transferred to a hospital in Washington, DC for emergency surgery due to being born with Spina Bifida and Hydrocephalus. I had a shunt placed in my head and spent the first few months in the hospital. My parents were told by doctors that I would never be able to walk, talk, or live past age 4. I spent the next 12 years in/out of the hospital. I had a

Cassiel

Cassiel

Cassiel was born five months ago with spina bifida L4-T2 and hydrocephalus. He has the shunt surgery and back surgery and everything went well until he turned two months old and got e coli meningitis. He barely made it twice but he did make it however that left severe brain damage from seizures and mini strokes and and now he is very lacking in milestones. He half smiles sometimes but not much. How ever a few moms had babies about the same time and when I see them post how we

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