November - 2018

Walk-N-Rolling With Spina Bifida

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What EXACTLY is Spina Bifida?

WHEELCHAIR AIR TRAVEL – “QUAD” STYLE

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Around The World With Marie

Around The World With Marie

My name is Marie Harcubová, I'm a full-time wheelchair user born with Cerebral Palsy and I am an ambassador of Disway.org/en – travel web for disabled, where anybody can sign up and share their experience and also accessible/inaccessible travel tips. Even though I am in a wheelchair, I have visited with my mom nearly 30 countries around the world. I studied one year of High School in Virginia, United States. That's why I can speak English and traveling is easier for us. Our f

Bridget

Bridget

Hey everyone ! My name is Bridget Breen! I was born with a cyst in my brain. I was born about 6 weeks early so I wouldn’t have brain damage. I had surgery the day after I was born to have a shunt put in to avoid Hydrocephalus. Since then I’ve had many revisions because when I was little I would outgrow the tubing which connects it to my brain. The tubing is what helps blood flow to my brain and keeps fluid from building up in my brain. When my shunt fails I get really bad hea

Jeni

Jeni

Jeni Newman , the youngest of 5 was born with Myelomeningocele Spina Bifida. She lives in Florida . Growing up for Jeni was typical . She had her yearly doctors appointments and daily struggles in school. PE was her favorite class and like many other individuals with Spina Bifida, math was her least favorite subject in school. What kept Jeni going ? SPORTS!! Jeni is very active . She loves to play basketball . Jeni plays for a team called Sunrise Suns . Jeni has been playi

What Independence Means To Me

What Independence Means To Me

In May of this year I made the request to attend the local independent learning center. I would be receiving training in three areas: Daily living skills-cooking and cleaning, Assistive technology-Amazon Echo Dot and Orientation and Mobility-White Cane Training. I did well on all of my assessments and specific goals were set by myself and my instructors. For the first couple of classes I focused on my Amazon Echo Dot. The classes taught me the basics of the device and how I c

Back In Action !

Back In Action !

So, it’s been several months since I’ve written anything. There have been 2 main reasons for this; one being positive and the other, not so much. As an optimist, I’ll start with the good news! I HAVE GONE BACK TO WORK! Yes, I now work for a Treatment Center specializing in drug and alcohol rehabilitation. I am thrilled – I’d wanted to work in either the field of recovery or disability. I thoroughly enjoy my job and get along splendidly with my coworkers. The facility also mad

Hey I’m Cindy !

Hey I’m Cindy !

Hello I’m Cindy! I was born with Myelomeningocele Spina Bifida. I do not have Hydrocephalus , so I wasn’t in need of a shunt. My life despite having a disability has been AMAZING ! As a child my parents didn't treat me any differently than any other child . My parents always let me know to push forward with anything I wanted to do. So, for the most part I didn't feel like I missed out on things because of my being a paraplegic. I got engaged very young and bought a house

Kayla & Matthew

Kayla & Matthew

Hey, my name is Kayla Otis . My son Matthew Otis was diagnosed at 3 months with generalized epilepsy. when Matthew turned one, we were told he had Hypotonia (low muscle tone). At 10 months Matthew was able to roll over. At 16 months old, Matthew sat up. When Matthew turned 2 years old he began to Crawl. Doctors diagnosed Matthew with ASD and Focal Epilepsy at 3.5 years. At aqe 4 Matthew began to use a posterior walker. Matthew just started walking 3 months ago. 1 month after

Hydrocephalus: The memories we retain (or forget) aren’t by choice…

Hydrocephalus: The memories we retain (or forget) aren’t by choice…

With memory issues being a challenge on any given day, a side effect of Hydrocephalus and the subsequent brain surgeries, it’s a pity we don’t get to choose which ones we retain or forget. (Don’t get me wrong, ageing definitely plays a part in it too but remember, this condition affects people of different ages. However, the reason/cause is not the same as that kind of forgetfulness, especially for someone who hasn’t quite reached senior citizen status). People often tell m

Jessie Gray

Jessie Gray

I am 36 years old and live in Elma, WA. I have 2 therapy cats namedMia and Lucy. I have been in a wheelchair full time since 2008. Prior to this, I used a walker for mobility. In 2008, I had a complication from having my large intestine removed and became an incomplete paraplegic, so I can't feel anything from the thighs down. I also have an uncommon form of Neuropathy that has damaged several organs. I have had 22 surgeries (minor and major) since 2006 to remove or repair or

Hey I’m Sarah

Hey I’m Sarah

I was born with Myelomeningocele Spina Bifida in the United Kingdom. Unfortunately for me, I was bullied all through grade school, high school and college. I was picked to take part in the special olympics. That opportunity made me a bit more confident and helped me to starting to accept my disability . I've been to 5 different places with the special olympics and about to go to my 6th. I still get weird looks and people talking about me behind my back, but I just ignore

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