March - 2019

Walk-N-Rolling With Spina Bifida

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What EXACTLY is Spina Bifida?

WHEELCHAIR AIR TRAVEL – “QUAD” STYLE

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A Dream

A Dream

Once there was a dream we had that flashed across our brains, we saw it as a vision that would sharpen as it rains and the tapping was a soundtrack as the roof would talk and sing, giving dream the rhythm that then became a thing… Twice there was a dream we shared that gave us what we need, we saw it in the images and how they’d come and feed our taste for instant knowledge where we understand the dream, feeling both progression and what symbols likely mean… Three t

Now -

Now -

Once there was an instant that all the souls who breathed gave gasping and elation to what was then perceived, an inkling of nirvana as all will be revealed in the turning of a word and what fate has sometimes sealed... Once we gave a thought to all that can be held in what the past can say, what our minds will meld with the teachings of the Tao and what can be perceived between the lines of truth and what culture has then weaved... Once we moved our truth,

Another Day In My Life

Another Day In My Life

After another undisturbed nights sleep, I scooted straight to the bathroom, to avoid impending disaster. I wasn't waiting long, until my morning care arrived. He walked with me the usual amount for a DCF day. He was just walking with me the eighth time, when my intercom buzzed. "They can wait" I told my carer, guessing it was the early arrival of DCF. After making their own way, I was surprised to see it was the new member of staff. After pushing me t the minibus, the driver

Life Throws Curveballs

Life Throws Curveballs

I want to begin by saying thank you for taking the time to read this blog I hope you find it helpful. My name is Gretchen Bailey I have multiple medical conditions which allow me to see the world differently than others. While one of my diagnosis is not Spina Bifida we still can find help and strength through our commonalities. I spend my life trying to reshape the way people Envision the Adaptive community. I am an advocate for embracing the fact that we all have adapted nee

On The Daily

On The Daily

On awakening, I could instantly tell it was time to get up, due to being light outside. On awakening, I got dressed and scooted to the bathroom. I wasn't waiting until my morning care arrived. He walked with me the usual amount for a D.C.F day. I then cleaned my teeth. I was brushing away, when my intercom buzzed. It was the chef aided by the new member of staff. After I was pushed to the minibus, the new chef drove to the day center. Picking up people on the way. On arrival,

The last 7 Days

The last 7 Days

After another undisturbed night, I started the day reliving myself. I then scooted into the living room and waited for my morning care. He arrived and walked with me the usual amount for a D.C.F day. He was walking with me the eighth time, when my intercom buzzed. I knew even before it was answered, who it was. "Their early" I remarked. "Ignore them," I added. 'It's their fault for being early', I thought. "Go to the communal door," I asked him. He then, like a magic trick he

Dancing Away With SB

Dancing Away With SB

Hey everyone my name is Carina Ortiz. Since I was born my life has been full of struggles, but I've managed to fight them successfully. I can say that I pretty much had a normal childhood, adolescence, and adulthood. In my free time , my hobbies have changed throughout my life, but some of them has always been the same: dancing & listening to music.What inspired me to be a Zumba instructor? Well, when I had the opportunity in 2013 to go to a near gym, and participate in clas

Nance

Nance

Nearly 50 years ago, Nance Vlinder was born in the Netherlands with Spina Bifida and Hydrocephalus; she was shunted right after birth. Nance does not walk and uses a wheelchair. Nance has been in a wheelchair since the age of 4. Growing up for Nance was fun, but there were hard times as well. The hardest part of growing up was having to watch kids do things she couldn’t do herself, such as ice skating. Nance enjoys various things. Currently Nance is a PR for a country band, w

What Are People With Disabilities Looking for When Looking for a House or Apartment?

What Are People With Disabilities Looking for When Looking for a House or Apartment?

Are you a realtor or just a person with a disability? Let’s discuss what people with disabilities are looking for when looking for a place. When I moved out on my own I was of course looking for places I could live that were accessible and accommodating. List of things I was for so I could live comfortably: Was the place close near a bus stop? Did the place have a ramp or steps? Was there a walk in shower or a tub? Was I allowed to put grab bars up in the bathroom? C

We Didn’t Start The Fire

We Didn’t Start The Fire

Perspective can be an enlightening thing and therefore I present you this metaphor. It caught fire amongst some bloggers a while back and I've been pondering the scenario as a way to present a truth many deal with every day. Open your mind and consider: Imagine everything in your house is on fire, and you’re standing there in the middle of your yard and the fire department comes and says to you, "Describe the fire to me and maybe we can find what caused it. We'll worry abou