When you go from care (practically non-existent) to doctors using words like: “You are high risk”, “This is serious”, “This is important to get checked out, sooner rather than later”, it leaves you feeling unsettled. The only way I can think to best describe it is, being abused – becoming accustomed to that way of life as “normal” until finally, you don’t know any better. Or…being forced into thinking that your concerns are unfounded and, something you’re just imagining. T

"Are those your children?" Years ago, I took my three daughters shopping. Nothing fancy, no special occasion. Just an average day as a father with his kids. In the midst of this everyday moment, a father with his children, a stranger approached me and with suspicion in her voice asked, "are those your children?" I don't recall how I responded but I do remember brushing off that punch in the gut feeling and proudly going about my day with my daughters. As a disabled father,

We recognize how hard it is to find adaptive outdoor events for anyone with a disability, and understand it’s even more difficult when looking for all-accessible camps for kids. So how do you find a camp? Social media plays an important role of course. Yes, there are some benefits to the web and places like Facebook. Without them a lot of kids would miss out, and it’s the parents that usually have to do the looking. Most of these camps listed below have been around for 10 to

Aaron and I are getting married next Saturday, May 18. We’ve invited 70 of our close friends and family. Originally we started with only 30 guests, but somehow we’ve ended up with 70 guests 🙂 It’s going to be such a magical day as there are so many family friends I have not seen in over a decade. We have a weekend full of events to celebrate. We are very excited and scrambling to finalize last-minute details. Unfortunately, I’ve developed bronchitis at the most inopportune

A few weeks ago, I went to an audiology appointment I’d been avoiding for over a year. Internally, I knew I could no longer hear as well as those around me. But my fear of learning this from a doctor kept me from facing the truth. Sure enough, I was told I have sensorineural hearing loss; hearing loss so severe, it’s usually seen only in those in their late 60’s (I just turned 39); and my hearing loss will worsen as times ticks on, necessitating repeated visits to an audiolog

Did you know that there are low income limits for services like social security, agency for persons with disability services, housing authority services, etc? These low income limits make it hard for people to live life to the fullest and get help they need. There are many people who get social security and different services to help them live more independently but with the low income limits, they can’t pay to get services, pay all the bills and have money to live. Let’s say

I’m a mother of 3, living with Hydrocephalus for the last 12 years, since diagnosis. For the most part, I’ve had a “good run” with the effects of the condition (well, as good as it gets, I suppose). Funny thing is, life didn’t exactly give way when it decided to thrust an incurable condition my way (No real surprises there…). But, I’m not complaining or “crying woe is me” for having it either, I accept it. Last week, I woke up with a headache, which lasted 2 days. This is not