What was it like to grow with Spina Bifida or any other disability for you? When I was born, the doctors told my parents that I would not live past a year, but if I did I would be a “vegetable”, a common term used back then. I was born in 1970, in the Caribbean. My parents ignored the doctors and took me home. They fought for me to attend regular school, because only live-in institutions existed for people with disabilities. At home, I played with my sisters, neighborhood f

For once, I have good news to share! Since my last past on losing my vision, my Neuro Ophthalmologist appointment was fast-tracked from 1 June to yesterday. Long story short, there are NO concerns about my vision! Thank God for small mercies…(Though losing your eyesight would definitely not be classed as “small!)” Not all things are this simple though as my road, once again, leads back to square 1. The suspicion is that it might be migraine-related, however, “An appointment

A few weeks ago, I wrote about the visual disturbances I’ve been experiencing. Something, which at the time, freaked me out (naturally). I went to the eye clinic upon my GPs insistence and walked away with a clean bill of eye health. However, I was told a referral would be done to the Neurosurgery clinic to investigate further. Suspicion of the visual disturbances being linked to my ETV possibly failing, have been the main source of concern. Then, a few days ago, I rece

This is an all too common feeling for those in the disabled community. It’s natural to look at what you can’t do instead of what you can. Plus, society doesn’t help. As a wheelchair user myself, I know first-hand how the world looks at someone with a physical disability as incapable. But in my opinion, that’s what makes it the most fun. We have the opportunity to shock the world and do the “impossible”. But too often we receive opinions as facts. “If it hasn’t been done befor