My name is Salini, I met Paul 3 years ago on a website call Badoo, we started out talking as friends, he told me a couple days after that he uses a wheelchair to get around and he has Spina Bifida and Hydrocephalus. We continue talking and eventually feelings started t...

Look At Me

When you look at me, what do you see?
Just someone in a wheelchair?
Someone with a broken body?
Look at me.

I'm a woman
I'm a daughter
I'm a sister
I'm an aunt
Look at me.

I have emotions.
I laugh
I cry
I scream
Look at me.

I see you.
I know you're curio...

November 28, 2016

  

Hi !My name is Celeste A. Daniels, author and founder of Skyewaters.com. I was diagnosed with a brain condition called Hydrocephalus at the age of 29 after contracting viral Meningitis at the age of 15 and then again at age 22, which left me with chronic daily h...

My name is Katherine Magnoli. I am thirty-three years old. I live in Sunny Isles Beach, Florida. I have Spina Bifida Myelomeningocele. Spina Bifida has made me a stronger person, So in a way, I am grateful to my disability because it has shaped me into the person I am...

      

     Hi my name is Ashleigh Johnson I was asked to give a little story about my life with Spina bifida. Here it goes, first of all I am the baby of the family of two kids. When I was born, I was a very sick baby for a while. I was in and out out of...

Joshua Dickinson a 30 year old man from Hamilton Ohio has myelomeningocele Spina Bifida, Hydrocephalus and is incontinent . Because of paralysis from Spina Bifida , Joshua uses a manual Quickie XL 1  wheelchair to get around , Josh takes Ditropan every day to control h...

Two years ago, I had the pleasure of meeting Maritza Garcia Rodriguez at a local LA Fitness during a Zumba class. Maritza Garcia Rodriguez, 39 years of age from Deltona, Florida was born with Muscular Dystrophy. What is Muscular Dystrophy? It is a group of diseases tha...

     

    Rolling With Spina Bifida is not all about wheelchairs, Depends, medicines and doctor appointments. In my eyes, having Spina Bifida ( Spina Bifida is the most common permanently disabling birth defect in the United States. Spina Bifida lite...

November 21, 2016

   

At the age of only 14, "custom fabrication" was already practically Sean Mahaney's middle name. By the time he graduated from high school he had too much business to continue working out of his home garage and had to open his own shop.

   From those early e...

November 20, 2016

Back in October I promised that at a later date I would get to the ins and outs of how my condition affects me. I think it’s about time I do just that in order for you to learn more about me and the impact UCMD has had on me personally. Alright, well I have a rare, deg...

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