Francisco Wafula is my son who was born on March 26th 2013, My son has Spina Bifida and Hydrocephalus. His operation was done when Francisco was only two weeks old, while shunting after three weeks. Francisco has a neurogenic bladder and bowel, he has no se...

December 29, 2016

 With New Years right around the corner - only 3 more days left to go - I wanted to discuss something that I personally have never seen discussed on any other disability-based blog. For most, New Years celebrations are fun and festive, but for others, they are stressfu...

All my life I’ve required care, whether it be from family members, friends or paid employees. For over a decade now I have been hiring my own personal assistants to help me with an array of tasks, including personal care. I have always chosen to recruit my own staff ra...

        

      Ethan was born April 6, 2007 at 4:34 AM . He wasn't breathing when he was born and his spina bifida was worse then what they thought. He had to be rushed into surgery. I didn't get to see him for 14 hours after his birth. He was hooked...