Nicole Nott's daughter Jillian was born with Spina Bifida Myelomeningocele and Hydrocephalus. Nicole, Jillian and the rest of their family are from Clinton, Ontario, Canada. Due to being incontinent, Jillian has to be catheterized every few hours. Jillian tends to get...

    

        Independence is a topic that often comes up by anyone affected by Spina Bifida (SB). Whether you are an individual living with SB or a family member of such a person. Often I read, on social media ( like facebook), posts asking about how to gain i...

Hello I am Bethany! I am the mother of a baby girl who was born with Spina Bifida. Her name is Piper. Our family’s story is a little different from many I have read because we have been so very blessed with Piper’s recovery and strength.

I took a blood test when I was...

       

  Suzett Jaquez is a 19 year old mother to be of a little girl who will be born with a birth defect called Spina Bifida. Suzett and her significant other had a lot of emotions inside of them. They were really shocked, very confused and devastated.

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        Hey there lovely people! I have recently been trying out a new daily routine of exercising every day as a way to be more active throughout the day. Do any of you exercise? if so, what kinds of exercise do you implement in your daily routine...

I am honored to have been given the opportunity to share my story in an effort to spread awareness and provide some insight into the life of someone living with Spina Bifida at Walk N Rolling With Spina Bifida. This is a story of strength, courage and overcoming advers...

My name is Kimberly Shaver and I was born with Myelomeningocele Spina bifida. I can walk with forearm crutches and I wear braces on my legs. But I do have a scooter for long distances. I have a Ventrical Peritoneal shunt. I am pretty independent. I do most everything m...

     

Hello my name is Krista Shulze. I am from Anna, Ohio, which is a very small town. I will start off with what it was like to find out that Caleb had a disability. From the beginning, being pregnant with Caleb was challenging. First of all, we we...

January 18, 2017

Hi, my name is Jaimie Hope. I became a published author in 2006 and CEO of my own publishing company in 2014. Oh yeah, I was also born with Spina Bifida and am a full-time wheelchair user.
I was born on November 3, 1976. Growing up, my home life was typical. I liked to...

    My name is Lori Bowen , I was born in September of 1966. I was adopted as a baby. I have Spina Bifida, plus 2 shunts to drain fluid from my brain because of Hydrocephalus. Some of my greatest experiences growing up were, I was the poster child for Easter Seals in 1...

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