September 18, 2017



     My name is Linda James Bennett. I had a very normal pregnancy, and like many moms, I was ready for my first child. I was looking forward to counting their fingers and toes to determine that they were normal. When my son didn’t speak and was slow to reach h...

Jenna was born with Spina Bifida Myelomeningocele. Jenna's parents found this out through an ultrasound taken when her mother was about 3 or 4 months pregnant. In order to close up her spine and repair the exposed nerves, Jenna had surgery when she was 2 days old in Ta...

September 16, 2017

Hey everyone, my name is Melisa. I have  Myelomeningocele Spina Bifida and Hydrocephalus. Due to having Spina Bifida, I am paralyzed from the waist down. I use a wheelchair to get myself to places. To control my Hydrocephalus, I have a VP shunt (Vetrical Peratoneal Shu...

September 15, 2017

I don't wanna cry anymore 

Even though I still hurt inside

 As I begin to clinch onto feelings 

That, are hard to describe.

I try to find some form of relief, 

Of letting go of this pain, 

While there always a consistent reminder, 

That keeps bringing me back to tha...