September 18, 2017

     

   

     My name is Linda James Bennett. I had a very normal pregnancy, and like many moms, I was ready for my first child. I was looking forward to counting their fingers and toes to determine that they were normal. When my son didn’t speak and was slow to reach h...

Jenna was born with Spina Bifida Myelomeningocele. Jenna's parents found this out through an ultrasound taken when her mother was about 3 or 4 months pregnant. In order to close up her spine and repair the exposed nerves, Jenna had surgery when she was 2 days old in Ta...

September 16, 2017

Hey everyone, my name is Melisa. I have  Myelomeningocele Spina Bifida and Hydrocephalus. Due to having Spina Bifida, I am paralyzed from the waist down. I use a wheelchair to get myself to places. To control my Hydrocephalus, I have a VP shunt (Vetrical Peratoneal Shu...

September 15, 2017

I don't wanna cry anymore 

Even though I still hurt inside

 As I begin to clinch onto feelings 

That, are hard to describe.

I try to find some form of relief, 

Of letting go of this pain, 

While there always a consistent reminder, 

That keeps bringing me back to tha...

   

     Chelsie had a brain tumor that has left her half paralyzed on her right side. She says it affects her in every way you can think of . Chelsie is  unable to get her license. Chelsie can't get married because she will lose her medical if she does ,. Che...

   

Hey everyone!!! I’m LeAnn! I was born with Myelomeningocele Spina Bifida with hydrocephalus. The level of my paralysis is L3-L4 . I do have a neurogenic bladder and also severe constipation. I have neuropathy in my right leg. I have a slight limp to my wal...

      

      Yesse Leyva is thirty-one years old from Hollywood, FL. Yesse was born with a birth defect called Spina Bifida Myelomeningocele, Yesse was also paralyzed at birth. Doctors said Yesse would not make it very far, they said she would never go to...

      In 2014 , Heather and Joseph from Ohio , found out they were pregnant. At 18 weeks , Heather and Joseph went for their gender reveal ultrasound . They were having a baby girl with Myelomeningocele Spina Bifida. At first Heather and Joseph were terrified. The doct...

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