Hello my name is Margaret Tengstrom. I have Lipo Myelomeningocele.  My back was closed when I was born.  I don’t have Arnold Chiari Malformation, and I can walk. 

The laminectomy’s started in 1985 and ended in 2007 when I contracted E....

September 19, 2018

Hi, my name is Mara. I have Spina Bifida. I have had several surgeries, as I am sure we all have. I also have Syringomyelia, and Hydrocephalus, Arnold Chiari Malformation type II, I also have a latex allergy. As of right now, I am fretting over my Arnold Chiari Malform...

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January 17, 2019

January 14, 2019

December 4, 2018

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