Rolling With Spina Bifida is not all about wheelchairs, Depends, medicines and doctor appointments. In my eyes, having Spina Bifida ( Spina Bifida is the most common permanently disabling birth defect in the United States. Spina Bifida literally means "split spine.") is a blessing. A lot of you may be reading this and asking your self "did she really say Spina Bifida was a blessing?", "How can Spina Bifida be a blessing?"
Spina Bifida is a blessing to me because I am able to see beyond what the average person sees . I can see a person for who they are and not for what they are or have . Spina Bifida does not and never will define who I am . I define who I am . It's bad enough society judges us as we go by them with our wheelchairs , walkers and crutches.
The society looks at me and says "the poor girl, she has a disability.", " That poor girl, she will never get to live a "normal" life. Or they will say "dang, that girl is lucky!" " She doesn't have to work and she gets to sit down all day."
Society looks at a person with a disability and thinks we have no quality or quantity of life. The fact of the matter is we can, we do and we will. I have Spina Bifida yes, but it does not have me. I live a normal life. I am living a life of quality .
Is my life easy ? Heck no! I go thru trials and tribulations just like anyone else . I cry tears, I feel pain but more importantly I smile thru it all because I have strength and faith on my side. The only difference between me and an able body person is I use a wheelchair to get from point A to point B. I may not work at a job due to secondary health issues but I still make a difference with my life.
With my time I have fun but at the same time I make sure to make an effort to help someone else. I go fishing at various lakes and springs, I enjoy catching any kind of fish. I crochet afghans and hats for those who are homeless, newborns and or in hospice thru my crochet groups "Happy Hookers" and "Stitches" in my community.
I also help those who are non disabled and disabled. I created through groups that are near and dear to my heart. Rolling With Spina Bifida is my first "baby". I created this group on Facebook in 2014 to help those with Spina Bifida, their family and for the community. Rolling With Spina Bifida offers support, solutions for problems and concerns for those with Spina Bifida and education for those in the community who don't know much about Spina bifida or don't know about the birth defect at all. Also, now it's become a website!
My second "baby" Stop Cyberbullying and Bullying Every Place was created almost a year ago on Facebook. This Facebook group was created to help individuals who are or have been victims of bullying, whether it be on line or in real life . Bullying a person is never okay.
Last but not least is my third "baby" Blogging for Disabilities is a Facebook group that was created recently. This group is geared to letting those with disabilities to share their blogs, stories or poems they have written. There is so many ways you can make a difference in your community, in the world . You just have to find a way that means the most to you . Do not let Having Spina Bifida or any disability stop you from having a quality of life or making a difference. Don't let anyone say you " CANT" ! I hope after reading this you can and will find a way to make a difference in your life and in other people's lives !