Hi , my name is Adriana Garcia! I am 41 years old from California. I am not sure what kind of Spina Bifida I was born with. I am wheelchair-bound. I can’t walk but I can feel my legs. I have Hydrocephalus , I am shunted. I have scoliosis, my back was shaped like an “S”. I had two rods put in my back to straighten out my back.
How does Spina Bifida affect me? Spina Bifida affects me in many ways. I can't travel long distance because I have to worry about bathrooms or finding transportation.
Growing up in a wheelchair, it was very difficult especially in high school. Math was the hardest subjects for me to understand and it was hard to keep up with everybody. During Junior High, I had what you call a one-on-one tutor or assistant. When I got to high school, I didn't have that anymore. I demanded that they put me in special education classes, which two of them were.
These classes helped me a lot because they help me with the homework and my regular classes that I had when I was in elementary school. I went to a school that specializes with children who have special needs. My greatest struggle was as an adult. I was having to try to raise my oldest son on my own until he was about four or 5. Then I had a friend help me.My friend and I now raise my two kids. I live on my own. The greatest struggle that I have everyday would be taking a shower.
In my spare time, my hobbies are crocheting, reading and writing in my journal . At the moment, I do not play any sports. To get around I use a electric wheelchair, so I'm not as active as I used to be when I was younger. I used to go to the gym, but because they wanted me to always have somebody with me I had to give that up since they wouldn't allow me to go by myself. My dislikes are heights, scary clowns, spiders and flying animals.
My advice to current and future parents who have or will have a disabled child, try to let them do as much as they can on their own. do not do everything for them, it will limit them and they might become less independent.
My advice to the individual that's an adult who has a disability or even a young adult I would say once again do not give up and try to do as much as you can by yourself unless of course you absolutely cannot do it .The best advice I can give is to try to live your life to the fullest and whatever you do, please don't give up.