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Nicole Nott's daughter Jillian was born with Spina Bifida Myelomeningocele and Hydrocephalus. Nicole, Jillian and the rest of their family are from Clinton, Ontario, Canada. Due to being incontinent, Jillian has to be catheterized every few hours. Jillian tends to get UTIs (urinary tract infections) a lot. One kidney is only functioning at 30%, but the other one is good.

Jillian does not have much feeling in her legs from the knees down. Jillian walks on her own but not perfect. She walks perfect in my opinion, though. She is 8 years old, and will be turning 9 this year. Jillian loves to read books and watch Netflix.

Jillian likes to play games on her iPad. In warm weather, Jillian likes to play in sandboxes, on swings and go swimming! Nicole's advice for parents in the present and future is "Hang in there, it does get easier!" "The child(ren) will teach you more than anyone else ever will about Spina Bifida and tolerating a disability. 

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June 15, 2019

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