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Cassiel was born five months ago with spina bifida L4-T2 and hydrocephalus. He has the shunt surgery and back surgery and everything went well until he turned two months old and got e coli meningitis. He barely made it twice but he did make it however that left severe brain damage from seizures and mini strokes and and now he is very lacking in milestones. He half smiles sometimes but not much. How ever a few moms had babies about the same time and when I see them post how well they are doing with there SB babies, I get very sad and think my son had so much potential and was going to be so much more than what defined him and now I'm just so lost and grieving the life we would of had. Sorry about not being able to be on the page much but I'm just dealing with a lot of things we never thought we would have to.

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