©2018 BY WALKNROLLINGWITHSPINABIFIDA. PROUDLY CREATED WITH WIX.COM

Archive

Please reload

Tags

Jessie Gray

 

I am 36 years old and live in Elma, WA. I have 2 therapy cats namedMia and Lucy. I have been in a wheelchair full time since 2008. Prior to this, I used a walker for mobility. In 2008, I had a complication from having my large intestine removed and became an incomplete paraplegic, so I can't feel anything from the thighs down. I also have an uncommon form of Neuropathy that has damaged several organs. I have had 22 surgeries (minor and major) since 2006 to remove or repair organs, as well as to do Botox bladder injections and replace central line ports.
 

I have two Ostomies, an Ileostomy and a Urostomy. I also have a GI feeding tube due to functional short bowel syndrome and Gastroparesis. Though I can eat, only half of the food and fluids I consume stay in me to be digested, so I have to supplement with formula and Pedialyte solution.
Just for fun, I have named all the appliances on my belly. My Urostomy is named Pete, Ileostomy is named Repeat, feeding tube is named Slink, and he central line port is named Nubby. 

Please reload

Recent Posts

June 15, 2019

Please reload

Please reload

RSS Feed